Hello! I haven’t done a Chronicles of Illness post in a while, have I? Seems about time.
Rather than this one being full of tips on how to cope with your illness, this one’s more of an update on my life, and why I’ve come to the decision to take a momentary YouTube break.
As many of you will probably already know, I’ve been having a lot of issues with my jaw for a little while now – I’ve lost a lot of weight because I’ve been struggling so much with eating and drinking, been having pretty bad headaches because of dehydration and the muscle spasms in my jaw, and mostly I’ve just been laying in bed because I have pretty much zero energy; especially in the last week or so.
I managed to summon the strength to go to my leavers prom last week and had a lovely time seeing everyone, but that night really made me realise how much I’m struggling at the moment! If you’ve seen any of my videos for the past month, you’ll also know that talking causes me a lot of pain. So, I’ve decided to heed the very kind advice of a lot of the comments on those videos, and have a little YouTube break until something’s done to help my face. I’m going to carry on with my blog posts on the two-a-week rota I have going on (because I enjoy it and want to speak to you, not because I feel I need to) and stick with Instagram like I have been. On days that are better or if I want to show you something, I’ll upload a video to my YouTube channel
I’m not going to stubbornly avoid it, I’ll just upload as and when rather than to a specific schedule like usual. It’s just that I’d rather make good videos that you’ll enjoy watching than upload pants videos but stick to my schedule! I’m most definitely going to be coming back (hopefully very soon), so please don’t unsubscribe – I won’t be gone long!
In the meantime, if you could follow this blog so that you can keep up to date with my happenings, it would really mean a lot! Don’t worry, I don’t spam your inbox with emails (I don’t even know how to send a group newsletter, so there’s no chance of that happening anyway) and it would really cheer me up to see new followers when I’m feeling so pants! If you’re interested in what the current plan is with me medically, here’s the lowdown:
I have an MRI today (the day I’m writing this that is, Friday) on my jaw, and an emergency meeting with the oral surgery team in Norwich next Thursday to look at the MRI results and plan what the next steps are. On Tuesday (the 18th) I have an appointment with a dietician to get the lowdown on what the plan is for my little tummy – whether to carry on going through the (literally) agonising experience of trying to drink the meal supplements, or whether we’ll think about going down the NJ tube route. I’ll keep you all updated!
I hope you understand my YouTube hiatus decision, it’s definitely not what I wanted to have to do – I love making videos and chatting to everyone in the comments, it’s just unfortunately another thing that my stupid chronic illness has forced me into and is a decision that took a long time to make and has, to be totally honest with you, really gotten me down! Please don’t unsubscribe, I’m so grateful for your loyalty and I promise that keeping me in your subscription list will be worth it in the end!
I really do hope you’re all doing well health and happiness wise, even if I’m not… just another hurdle to get over, and I’m sure I’ll be back to my usual level of crippled-ness soon!